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Section 2
Steroids
Katie was immediately started on steroids which are used to reduce swelling around
the tumour and the brain. Steroids are likely to be administered at the diagnosis
stage and they will also be required at later stages during treatment.This is ideally
given as ‘pulses’,with a short course of a few days and then weaned off, as this gives
maximum beneft and fewer side effects. However, some children may require
steroids for a much longer duration during treatment. Dexamethasone is the main
steroid used.
Side effects:
Irritation of the stomach lining - Omeprazole or Ranitidine is given to help
with this
Swollen tummy and chubby cheeks
Increased appetite – your child may put on weight quickly but he or she could
appear to be thin elsewhere. Although Katie’s appetite was ravenous and she
put on weight all over, this will depend on the child.The often speedy change in
a child’s appearance can be very upsetting for parents so do bear this in mind
Steroids can affect mood so the child may become hyperactive or upset and
emotional, or fuctuate between the two
They can disrupt sleep patterns so tend to be given in the morning and at
around 2pm to avoid this
The Treatment Plan
Your consultant will explain the treatment plan (sometimes referred to as the protocol).
This is a plan for the best combination of radiotherapy, chemotherapy and any other
treatment needed for your child.
The protocol shows the frequency and length of radiotherapy and chemotherapy,
as well as telling you how long the whole treatment plan is expected to take (usually
between fve and 12 months).There is likely to be a major assessment of progress
including repeat scans with your consultant every two to three months or at
signifcant points.Depending on this the treatment plan may change accordingly.