32
Celebrating Katie’s spirit by doing good for others, in a way that Katie would
have been proud of...
The Katie McKerracher Trust was set up in memory of our daughter Katie who was
diagnosed with a DIPG in February 2008. Katie passed away in January 2009 and
we wanted to do something constructive and positive, in her name,which would
both celebrate her life and provide support for families going through the same
devastating experience as we did.
We never got to know other patients and their families in the same situation as us
but are in no doubt that this would have helped us hugely.We are positive that our
experiences can help other children and their families deal with the impact of a
DIPG, in both practical and emotional ways.
Please get in touch if you feel you need our help.
Support available
The Katie McKerracher Trust was established in 2009 and provides emotional
and/or fnancial
*
support by:
Offering fnancial assistance to patients to help them deal with practical
day-to-day issues
Meeting with patients and families to help them understand what might
happen, share our experiences, and answer any questions they may have
Providing some fnancial assistance to access alternative healing or
therapy if appropriate
Working with health professionals to seek to improve treatment for
DIPG patients
*
Please note that the only pre-condition for applying for a monetary grant is a copy
of the letter of diagnosis (this is a requirement in the Trust’s constitution).
Examples of things we have helped with so far are travel expenses, equipment to
make it easier to move in/out of cars, help with household appliances, and days out
for the family.