Page 5 - DIPG Info Booklet

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There was a huge improvement in Katie’s health for a three month period but sadly
she began to deteriorate once more and passed away four months later, in January
2009, having suffered respiratory failure. Life for our family has a huge hole which we
can never fll and it made us determined to help patients and family members going
through the same experience.
This booklet explains the various stages you are likely to go through, from the shock
of diagnosis and embarking on a treatment plan to the importance of keeping a
diary,maintaining regular and effective communication, asking questions, and how
to cope with the effects of the disease as a family on a day-to-day basis.
We have also included information on the medical teammembers you’re likely to
come into contact with, plus a section on the Katie McKerracher Trust and how it can
- and does - help families like yours.
We hope you fnd this booklet useful and informative. Please contact us directly on
Tel: +44 (0)1750 52387 / email: info@katiemckerrachertrust.co.uk
for further
support should you need it.